What Keeps Me Going? Lived Experiences of Parents Having Children with Disabilities

Dexie Rose L. Pely

Holy Cross of Davao College Inc., Philippines

Email Address: dexierose.pely@hcdc.edu.ph

How to cite:

Pely, D. R. L. (2025). What Keeps Me Going? Lived Experiences of Parents Having Children with Disabilities. International Journal of Interdisciplinary Viewpoints, 1(1), 56–74. https://doi.org/10.5281/zenodo.15817318

ABSTRACT

Raising a kid with a handicap is a path defined by love, sacrifice, and sometimes great hardship. This qualitative phenomenology study investigates the lived experiences of parents in Banaybanay District, Davao Oriental, caring for children with disabilities. Rooted in Resilience Theory (Masten, 1994; Masten, Best, & Garmezy, 1990), the study concentrated on how parents of children with disabilities confront difficulties, adjust to obstacles, and undergo developmental results. Ten parents from both mainstream and special needs schooling programs were chosen using purposive sampling techniques such as in-depth, open-ended interviews that let people think carefully about their path-acquired data. Thematic analysis identified three important areas: developmental outcomes, adaptation strategies, and challenges. Parents reported daily care load, behavioral problems, medical issues, educational obstacles, and financial struggle under adversity. Emotional control, patience, faith, social support, and outside support were included in the adaptation processes. Parents said that despite their challenges, major developmental results included personal development, closer relationships, and better coping techniques. The results guide future policies and programs by implying the possibility for mediation analysis and the application of recognized themes as variables in statistical studies. Most significantly, our work provides a platform for these parents’ voices to be heard, appreciated, and better understood.

Keywords: 

lived experiences, children with disabilities, parental involvement

Received: 17 Mar 2025 Revised: 20 Apr 2025

Accepted: 17 May 2025 Available: 31 May 2025

© 2025 The Author

REFERENCES

Abrol, M. (2023). Role of teacher in promoting inclusive education. International Journal for Multidisciplinary Research (IJFMR), 5(2), 1–2.

Ainscow, M. (2020). Promoting inclusion and equity in education: Lessons from international experiences. Nordic Journal of Studies in Educational Policy, 6(1), 7–16. 

Ainscow, M., & Sandill, A. (2010). Developing inclusive education systems: The role of organisational cultures and leadership. International Journal of Inclusive Education, 14(4), 401–416. 

Allagui, B. (2022). Facilitating creativity through multimodal writing: An examination of students’ choices and perceptions. Creativity. Theories – Research – Applications, 9(1), 108–129. 

Arias, C. R., Calago, C. N. S., Calungsod, H. F. B., Delica, M. A., Fullo, M. E., & Cabanilla, A. J. B. (2023). Challenges and implementation of inclusive education in selected Asian countries: A meta-synthesis. International Journal of Research in Education and Science, 9(2), 512–534.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.

Brown, C., & Lee, D. (2023). Inclusive teaching practices in engineering: A            systematic review of articles from 2018 to 2023. Journal of Engineering Education Research, 15(1), 45–67.

Brown, O. (2022). Integrating social emotional learning in educational practices. Frontiers of Educational Review, 4(1), 26. 

Burgstahler, S. (2008). Universal design in higher education: From principles to practice. Harvard Education Press.

Cagas, E. G., Cagape, W. E., Duyan, M. J. P., & Logdonio, R. (2023). Inclusive education practices among SPED/Gen-Ed teachers in Davao City. International Journal of Research Publications, 139(1). 

Carillo, B. (2024). Student-centered classrooms: Public elementary school teachers’ engagement strategies for learners in the 21st century. Nexus International Journal of Science and Education, 1(1).

CAST. (2021). The science and research behind the UDL framework.

CAST. (2024). The UDL guidelines. 

Catubig, M. B. (2023). Exploring student-centered approaches in mathematics education: A qualitative case study. Excellencia: International Multi-disciplinary Journal of Education, 1(3), 48–62. 

Chu, S.-Y. (2021). Culturally responsive teaching efficacy in inclusive education at Taiwanese preschools. Asia-Pacific Journal of Teacher    Education, 50(1), 97–114. 

Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Sage Publications.

Creswell, J. W., & Poth, C. N. (2018). Qualitative inquiry and research design: Choosing among five approaches (4th ed.). Sage Publications.

de Bie, L., & Brown, K. (2023). Forward with FLEXibility: A teaching and learning resource on accessibility and inclusion. eCampusOntario. 

Doore, S. A., Dimmel, J., Kaplan, T. M., Guenther, B. A., & Giudice, N. A. (2023). Multimodality as universality: Designing inclusive accessibility to graphical information. Frontiers in Education, 8, Article 1071759. 

Doo, M. Y., Bonk, C. J., & Heo, H. (2023). The effects of using scaffolding in online learning: A meta-analysis. Education Sciences, 13(7), 705. 

Forlin, C. (2021). Teacher education for inclusion: Changing paradigms and innovative approaches. Routledge.

Gelir, I. (2023). Teacher’s beliefs and flexible language strategies in a monolingual preschool classroom. Education 3-13, 51(8), 1256–1266.

Gheyssens, E., Griful-Freixenet, J., & Struyven, K. (2023). Differentiated instruction as an approach to establish effective teaching in inclusive         classrooms. In R. Maulana et al. (Eds.), Effective teaching around the world (pp. 678–693). Springer. 

Gosavi, C. S., & Arora, S. (2022). Active learning strategies for engaging   students in higher education. Journal of Engineering Education Transformations, 36(Special Issue 1), 1–7.

Gulati, G., Kakkar, S., & Chauhan, R. (2024). A comprehensive review: Effectiveness of multi-sensory learning strategies for learning disability students. International Journal of Education Sciences. 

Jiang, L., Yu, S., & Zhao, Y. (2022). Incorporating digital multimodal composing through collaborative action research: Challenges and coping strategies. Technology, Pedagogy and Education, 31(1), 45–61. 

Kohnke, L., Foung, D., & Chen, J. (2022). Using learner analytics to explore the potential contribution of multimodal formative assessment to academic success in higher education. SAGE Open, 12(2). 

Kuwari, K. (2024). Culturally responsive teaching: Strategies for promoting inclusivity and diversity in the classroom. Academy of Educational Leadership Journal, 28(S1), 1–3. 

Lawrence-Brown, D. (2020). Differentiated instruction and inclusive schooling. In Oxford Research Encyclopedia of Education.   

Liu, H., Liu, Z., Wu, Z., & Tang, J. (2020). Personalized multimodal feedback generation in education. arXiv preprint 

Mandabon, J. (2023). Readiness and efficacy of teachers in handling learners with special educational needs. International Research Journal of Modernization in Engineering Technology and Science. 

Mariga, L., McConkey, R., & Myezwa, H. (2014). Inclusive education in low-income countries. Atlas Alliance and Disability Innovations Africa. 

Meyer, A., Rose, D. H., & Gordon, D. (2014). Universal design for learning: Theory and practice. CAST Professional Publishing.

Morton, B., & Pilgrim, J. (2023). Promoting inclusive education: Social and emotional learning through the lens of Universal Design for Learning. Estonian Journal of Education, 11(1), Article 02b. 

Muega, M. A. G. (2016). Inclusive education in the Philippines: Through the eyes of teachers, administrators, and parents of children with special needs. Social Science Diliman, 12(1), 5–28.

Philippine Statistics Authority. (2024). An update of PSA’s most requested statistics. 

QDAcity. (2023). Thematic analysis. 

Ruiz-Pérez, S. (2023). Multimodal student voice representation through an online digital storytelling project. CALICO Journal, 40(1), 1–20. 

Scribbr. (2022). Triangulation in research | Guide, types, examples. 

Seo, J., & Dogucu, M. (2022). Teaching visual accessibility in introductory data science classes with multi-modal data representations. 

Singh, S. (2024). Inclusive education: Promoting equity and access for students with disabilities. Global International Research Thoughts,    12(1), 30–35.

Slee, R. (2018). Inclusive education isn’t dead; it just smells funny: The legacy of the Salamanca statement and the future of inclusive education in Australia. Australian Journal of Education, 62(2), 139–154.

Togni, J. (2025). Development of an inclusive educational platform using open technologies and machine learning: A case study on accessibility enhancement. arXiv preprint arXiv:2503.15501.

UNESCO. (2023). Global education monitoring (GEM) report. 

Varano, S., & Zanella, A. (2023). Design and evaluation of a multi-sensory representation of scientific data. arXiv preprint arXiv:2302.08226.

Vasinda, S. (2023). Technology supports in the UDL framework: Removable scaffolds or permanent new literacies? Reading Research Quarterly. 

Yan, W., Wang, Y., & Zhang, J. (2024). Evidence‐based multimodal learning analytics for feedback and reflection in collaborative learning. British Journal of Educational Technology, 55(2), 345–360.